Against Medical Advice: One Family's Struggle with an Agonizing Medical Mystery

Registered by easterngirl71 of Alton, Illinois USA on 11/5/2010
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4 journalers for this copy...
Journal Entry 1 by easterngirl71 from Alton, Illinois USA on Friday, November 05, 2010
Sending this book off to booklady331 as one of the books I promised in trade:) Thanks for being patient:)

One morning when he was almost five years old, Gory Friedman woke up with the uncontrollable urge to shake his head. From that day forward his life became an agony of irrepressable tics and involuntary utterances. Corey embarked on a thirteen-year odyssey of medication upon medication, treatment upon treatment--a constaintly changing regime that left him and his family feeling like gunie pigs in an out-of-control experiment. It soon became unclear which tics were symptoms of his condition and which were a side effect of the countless combination of drugs. The only certainty was that it kept getting worse. Simply put: Cory Friedman's life was a living hell.
Subjected to debilitating treatments and continious ridicule. Cory became devastatingly aware of how he appears to others. With the love of his family and the support of a few steadfast teachers and medical professionals, he fought for his very life, and you will cheer his amazing sucesses.

Journal Entry 2 by wingbooklady331wing at Cape Coral, Florida USA on Monday, November 15, 2010
Thank you for sending me the book. It arrived safely. Enjoy your reading.

Journal Entry 3 by wingbooklady331wing at Cape Coral, Florida USA on Saturday, March 05, 2011
This is an interesting and ultimately hopeful story of one child's struggle with Tourette's Syndrome, obsessive compulsive disorder, alcoholism and misunderstanding. Although Corey, the one afflicted, did not write the book, the authors present it in the first person with Corey's permission. This givs the story a personal feeling. Corey develops a severe form of Tourette's at age five. He is given a variety of medicines over the years, and he suffers from bewildering symptoms. Not surprisingly, he struggles at home and at school. Some of his teachers are understanding, and some not so, as he often disrupts the classroom with his behaviors.

The book details Corey's treatment and the support of his parents. Some of his doctors suffer from the messiah complex: the inability to admit that they might have prescribed the wrong medicine. He has a very hard time making friends.

I didn't always feel complete sympathy for Corey. At times, especially toward the end of the book, his complaining and apparent feeling he is never at fault got on my nerves. Corey maintains that his school aid entrapped him, reporting him for smoking on campus, an activity which was previously tolerated. He does admit that they "can't officially allow me to have a cigarette on the property." and he was supposed to walk far away from the school, but he was "a little lazy." He feels persecuted by the school board that recommends he repeat his junior year. After reading about the events of that year, It seemed that it was a reasonable decision, but the authors describe it unfavorable terms. The school relents when his mother makes a impassioned case for allowing him to continue.

The story is a valuable history of a child and a condition that is still a medical mystery. The writing is personal and direct. If you have an interest in Tourette's you should read this book, because it gives valuable insight into a personal experience. What we learn is that modern medicine can not always make things easier for everyone. The education system helped him in some ways, but failed him in others. As an educator I have had students with Toureete's and OCD in my classroom, but not were as serve as Corey. The book can be useful book for physicians and educators alike.

Journal Entry 4 by wingbooklady331wing at Ellicott City, Maryland USA on Saturday, March 05, 2011

Released 10 yrs ago (3/5/2011 UTC) at Ellicott City, Maryland USA

CONTROLLED RELEASE NOTES:

Enjoy! RABCK and KTM release challeges. to fanclub - a book from his wishlist.

Journal Entry 5 by fanclub at Baltimore, Maryland USA on Saturday, March 12, 2011
Came in the mail last night, a book from my wishlist - thank you so much for thinking of me!!!! Will be reading this one VERY soon!

Released 7 yrs ago (5/18/2013 UTC) at Hawaii Book & Music Festival in -- Mail or by hand-rings, RABCK, meetings, Hawaii USA

WILD RELEASE NOTES:

This book will be released during the 8th Annual Hawaii Book & Music Festival, held on May 18-19, 2013. It is a weekend filled with the joy of books and the sounds of music and laughter. It is my pleasure to release my books into the wild on this day. I hope that you enjoy this book, and that you had a great time finding it out in the wild!

http://www.hawaiibookandmusicfestival.org

Good luck, little book! I hope we hear from you soon!

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