With the Light: Raising an Autistic Child, Vol. 1

by Keiko Tobe | Graphic Novels |
ISBN: 0759523568 Global Overview for this book
Registered by wingAzukiwing of Miami, Florida USA on 5/13/2016
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4 journalers for this copy...
Journal Entry 1 by wingAzukiwing from Miami, Florida USA on Friday, May 13, 2016
Thank you VeganMedusa for sending me this wishlist book for my birthday. In the U.S., many people think only of superheroes and fantasies when they think of graphic novels, but this book is a good example that in Japan, manga is just a medium like movies, printed words and others, a method to pass on ideas and stories. This series is about an autistic boy Hikari (the name means Light). This first volume is about how his mother found out that he is autistic. There are tear-inducing moments of how she was considered a bad parent for the unruly behavior of her son, especially in a Japanese society where proper behavior and harmony is so valued, and moments of little milestones that the family accomplishes.

While I know little of the system in the U.S., it was also an interesting look into how social welfare and school system operates in Japan.

Journal Entry 2 by wingAzukiwing at Miami, Florida USA on Monday, August 15, 2016
Sending this off to my BD partner. Happy Birthday! (sorry a little late)

Journal Entry 3 by wingnimrodielwing at Evanston, Illinois USA on Tuesday, August 23, 2016
your amazing birthday box made it here albeit a little worse for wear as one end was very squished. I was happy to see this wishlist book as it made it onto my wishlist after reading something that you wrote about it on the bookobsessed boards :)

Journal Entry 4 by wingnimrodielwing at Evanston, Illinois USA on Monday, June 26, 2017
Born during the sunrise - an auspicious beginning - the Azumas' newborn son is named Hikaru, which means "light". But during one play date, his mother notices that her son is slightly different from the other children. In the alternately heartwarming and bittersweet tale, a young mother tries to cope with both the overwhelming discovery of her child's autism and the trials of raising him while keeping her family together. This is a story that resonates not only for those whose families have been affected by autism, but also for all past, present, and future parents.

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I found this amazing, and touching and moving. When Hikaru's father and grandmother realized how wrong their behavior toward both he and his mother was affecting daily life, I was in tears. I loved seeing how the social services and schools in Japan work. While I understand that this book was written in 2007 and even here in the USA autism awareness and teaching has changed quite a bit since the early 2000's I really enjoyed this story. Now off to start book 2 :)

Journal Entry 5 by wingnimrodielwing at Evanston, Illinois USA on Monday, June 26, 2017

Released 6 yrs ago (7/1/2017 UTC) at Evanston, Illinois USA

CONTROLLED RELEASE NOTES:

I am adding this to my manga and graphic novel book box.

Journal Entry 6 by wingGoryDetailswing at Nashua, New Hampshire USA on Wednesday, July 5, 2017
I've read this, so I'm leaving it in the box for someone else, but wanted to add my thoughts on this marvelous series.

I was thoroughly impressed - and delighted - with this book, which depicts many of the problems of raising an autistic child, not pulling punches or candy-coating it in any way, but leaving room for hope. It opens with Sachiko, a young wife and mother, discovering that her infant son Hikaru has autism, something she'd never really heard of before. She encounters (apparent) disinterest from her husband and outright animosity from her mother-in-law, who not only refuses to believe in the diagnosis but considers any problems with young Hikaru to be her fault. We see her attempts to find ways to help her son - and to help herself; imagine the confusion and heartbreak of a parent who cannot hold a crying child to comfort it, because the child hates to be touched... (That alone strikes me as one of the most difficult aspects of the situation.)

There are many lovely moments in among the difficult ones; when young Hikaru first hands his mother a flower and she realizes he is aware of her, may even care for her, just not the way she'd imagined. After a heart-wrenching disruption in her marriage, her husband achieves an epiphany of his own regarding his family's greater need for his presence than his paycheck. Hikaru's first word - well, I actually teared up.

There's a lot to make one angry, too - the prejudice of those who, even after learning about autism, won't make any attempt to adjust their behavior to ease the way for Hikaru; the less-adept of the educators and day-care staff - though there are also some really marvelous individuals who are able to make huge improvements in the lives of their young charges; there's even some active nastiness by a woman who fears for her own child who's in the same day-care with Hikaru (but who turns out to have dark reasons for her extreme views). Some of these people come around eventually - others, not so much. And the book does show just how scary and exhausting it can be dealing with the more severely autistic kids - but it also shows the value of consistency and education (of the kids and of their families and caretakers).

Time passes, Hikaru grows and learns - slowly, yes, and with setbacks, but it seems that he is improving. But his mother has to do a LOT of work to find suitable day-care and, later, schools for him; one of the points of the book is the lack of decent schooling for autistic kids, even as it demonstrates how good educators can improve the kids' lives and bad ones can reduce their ability to function. Hikaru's mother does an immense amount of work herself, setting up charts and schedules for him, figuring out ways in which he can communicate better, amuse himself safely, get things done...

Despite her best efforts, there are times when Hikaru gets away - and into trouble, from wandering into traffic to - well, there's an especially frightening incident fairly late in the book, which luckily turns out OK, but I was on the edge of my seat for a while there!

Near the end of the book, Hikaru gets a little sister - during a typhoon! - and the chapter ends on a simply lovely note.

The book includes sidebars with tips on making the home safe for kids (whether with developmental problems or not), suggestions on how to interact with someone with autism, what to do if they panic, and other helpful items. There are also a couple of accounts of real-life autistic children at the end of the book, and translation notes for some of the panels. I thoroughly enjoyed this book, and strongly recommend it!

[There's a TV Tropes page for the series.]

Journal Entry 7 by AlterEgoZoe at Stroudsburg, Pennsylvania USA on Tuesday, July 11, 2017
I've read this series before (in fact, have the entire series on my bookshelf). However, one of my theater student's mom is a special needs teacher and her son is on the ASD spectrum. I've been telling her for years about this series, so I'll be gifting these to her.

(I do wish the live action movie based on this series was released, even in subbed so I can watch it!)

Took out of Nimrodiel's manga/graphic novel box.

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